The Pennsylvania Homecare Association (PHA) has developed “The Care We Share: A Family Guide to In-Home Pediatric Care.” This 36-page resource is available free of charge to Pennsylvania families, and includes helpful information and tips as they bring home a child with complex medical needs such as ventilators, trach collars, and feeding tubes. Articles range from coordinating shift nursing to preparing your home for durable medical equipment, and more.
The resource also features parents who utilize home-based care for their children, including Cindy Maloney of Harrisburg. Her 5-year-old daughter Lavender was born at 23 weeks and has faced a number of serious medical issues, including cerebral palsy, epilepsy, neurological damage and seizures. Currently the Maloney family uses 10 hours of in-home nursing care daily to help Lavender reach important milestones.